The ACLT (African Caribbean Leukaemia Trust) is a 41 times award winning charity dedicated to raising the number of Black and Ethnic Minority donors on the UK stem cell, blood and organ registers. It was founded in 1996 by Beverley De-Gale OBE and Orin Lewis OBE shortly after their six year old son Daniel De-Gale was diagnosed with Acute Lymphoblastic Leukaemia. Daniel faced odds of over 1 in 250,000 chances of finding a matching donor due to the distinct shortage of people of African-Caribbean heritage. A donor was eventually found for Daniel, (after an extensive worldwide campaign) in June 1999, but he tragically died nine years later due to health complications which resulted in Multiple Organ Failure.

Anthony Nolan saves the lives of people with blood cancer. Founded in 1974 as the world’s first stem cell register, we’re motivated by a mother’s determination to save her son, Anthony. Now saving three lives every day, our charity is a lifesaving legacy. 

By growing our register of potential stem cell donors, conducting ground-breaking research into improving transplant outcomes, and providing outstanding support and clinical care for patients and their families, Anthony Nolan cures people’s blood cancer and blood disorders.

But we need to do more. We need to ensure that everyone in need of a lifesaving transplant can find their match, have a successful transplant and a future full of hope. But we can’t do it without you. Without you, there is no cure.

We’re the UK’s leading blood cancer charity. Since we were founded in 1960, we’ve spent £500 million on blood cancer research to improve treatment and care for people living with all types of blood cancer – including leukaemia, lymphoma and myeloma – and provide anyone affected with advocacy, information and support. There are more than 5,500 people currently on Blood Cancer UK funded clinical trials and last year we sent out over 45,000 blood cancer information booklets.

Our charity was founded in 2004 by patients with Chronic Lymphocytic Leukaemia (CLL) and their partners. Currently, we have more than 3,000 members whom we seek to inform, empower and support at all stages of the disease from diagnosis forwards. We are the only UK charity dedicated to addressing the unmet needs of those with this long term, incurable condition. Membership is free and gives immediate access to our regular newsletter, helpline and conferences with expert consultant speakers across the UK. www.cllsupport.org.uk.

We are a patient-led group with a sole focus on CML operating overwhelmingly online to offer information, advocacy and support primarily to patients in the UK. Provided access to targeted therapies is available, most patients can now look forward to a life expectancy similar to that for the general population. Their concerns, therefore, tend towards treatment strategies that address the diminution of quality of life associated with a lifetime of drug treatment. We are also active in securing a similar environment for the small proportion of the patient population remaining unresponsive to solely drug-based treatments.      

DKMS is an international not-for-profit organisation.  Since 2013, in the UK we have registered over 500,000 people as potential blood stem cell donors with more than 860 giving second chances at life to people with blood cancers and disorders. Globally, we have registered over 9 million donors and facilitated over 80,000 donations.

Our mission is to find a matching blood stem cell donor for everyone who needs one. We do this by raising awareness, recruiting and retaining potential donors, and facilitating donations. With many people still unable to find the matching donor they need, our worldwide search for new donors continues.

Leukaemia Care is a national blood cancer support charity. We are dedicated to ensuring that anyone affected by blood cancer receives the right information, advice and support.

Leukaemia & Lymphoma NI is the only charity in Northern Ireland dedicated to blood cancer research.

Their main objective is to improve survival rates and quality of life for all blood cancer patients by supporting clinicians, scientists and students researching these diseases.

Leukaemia Cancer Society provides wrap around support to patients with any of the blood cancers. We step in quickly to give practical help and advice and provide long term support to survivors. We can make quick decisions and offer financial support when there are no other options. We help with accommodation and travel costs for patients from outside London, we provide a helpline and free or low-cost counselling. We help to find bone marrow donors by running targeted publicity campaigns targeted at people who share the patient’s heritage. We support the work of the AML Research Unit at Cardiff University through grants.

Leukaemia Cancer Society began in response to a mother’s appeal for donors from the Cypriot community. We still have strong connection with this community in the UK and around the world but work with people from all backgrounds and ethnicities.

We are Leukaemia UK. Despite decades of incredible progress, only half of leukaemia patients live longer than five years after their diagnosis - we won’t stop until we change this. Bringing together the leukaemia community, we will accelerate progress through life-changing research, awareness and advocacy, doing everything we can to make sure that the next person with leukaemia has the best possible experience of diagnosis, treatment and care.

Lymphoma Action is the only UK charity dedicated to lymphoma. We're here to make sure that nobody faces lymphoma alone. However you are affected by lymphoma, we are here to help – with free information, support services and opportunities to connect with others.

MDS UK is the only charity in the UK focused solely to Myelodysplastic Syndromes (MDS).

MDS is an umbrella term for a range of rarer and less well known blood cancers. Since 2009, our organisation has been dedicated to provide support and information to families affected by the disease, and running campaigns to ensure access to the right care and treatment for the patients, with emphasis on quality of life. As of 2019/2020, MDS UK is also supporting research towards a cure for MDS.

The charity is based at King’s College Hospital, one of the main centres of excellence for MDS, and is supported by the main MDS experts in the UK

Myeloma UK is the only organisation in the United Kingdom focused exclusively on myeloma and related conditions. We provide information and support services to patients and educational resources for healthcare professionals.  Our translational research programme builds understanding of the causes of myeloma as well as driving the development of novel treatments, and is supported by our work in patient advocacy, improving access to treatment and care for our patients.

Race Against Blood Cancer was set up in 2015 by a group of professionals who were devastated by the news of a close friend’s own blood cancer diagnosis.  The team decided to be pro-active in their approach to the issues surrounding stem cell and bone marrow transplantation; not only for their friend, but for all patients with blood cancer who are currently seeking a match. 

Our ultimate goal is to increase the total number of people on the stem cell and bone marrow register, with a particular emphasis on increasing the sign up from minority groups – whether defined by race, ethnicity or gender – who are vastly underrepresented on the donor registry at present. 

WMUK is the only charity in the UK focused solely on Waldenstrom’s macroglobulinaemia (WM), a rare type of blood cancer. Our goal is to improve the quality of life and survival of people with WM by providing support, and ultimately finding a cure.

We are a partnership of WM doctors and patients in the UK working together to improve the treatment and care of people with WM.

Our work is focused on four transformational areas:

• Accurate diagnosis and high-quality care

• Personalised information and support

• Research that matters to patients

• ·Access to new treatments