Access to Medicine
This page is dedicated to the Blood Cancer Alliance’s continued work focusing on access to medicines and treatment for blood cancer patients. In 2022, we published report focusing on this issue, which highlighted a number or areas where improvements could be made.
BCA Joint Statement on NHS England Commercial Framework Consultation
On 25th September 2024, the Blood Cancer Alliance published a joint statement with patient organisations on NHS England’s Commercial Framework consultation. The statement is co-signed by Cancer 52, the Charity Medicines Access Coalition, Fifth Sense, Sinus UK, EOS Network and Prurigo Nodularis International. The statement can be viewed here.
BCA Joint Statement on VPAS covered by Pharmaphorum
Please see linked here an article by Leela Barham for Pharmaphorum which mentions the BCA’s joint statement with Charity Medicines Access Coalition (CMAC), Cancer52 on VPAS which was published in March 2023
BCA Joint Statement on VPAS
Please see linked here the BCA’s joint statement with Charity Medicines Access Coalition (CMAC), Cancer52 on VPAS which was published in March 2023.
BCA Statement on VPAS covered by Pink Sheet
Please see linked here an article by Leela Barham for Pink Sheet on the BCA’s statement on VPAS.
BCA Statement on VPAS
Please see linked here the BCA’s statement on VPAS which was published in October 2022.
BCA response to consultation on the Innovative Medicines Fund
Please see linked here the BCA’s response to the NHS England, NHS Improvement and NICE consultation on the Innovative Medicines Fund.
Meeting with Grahame Morris MP
On Monday 1st March 2021, we met with the Vice-Chair of the APPG on Cancer Grahame Morris MP to discuss the BCA’s Access to Medicine Report.
Within the meeting we also discussed a range of issues facing the blood cancer community including the Cancer Drugs Fund, vaccination access for blood cancer patients and calls for blood cancer to become part of the ‘Big Five.’
Answers to written questions in Parliament
Please find links below to the recently tabled questions questions by Martyn Day MP, the SNP Public Health and Primary Care Spokesperson:
Meeting with Jim Shannon MP
On Monday 18th January we met with the DUP’s Westminster Health and Human Rights Spokesperson Jim Shannon MP to discuss the BCA’s Access to Medicine Report.
Within the meeting we also discussed a range of issues facing the blood cancer community including the Cancer Drugs Fund and vaccination access for blood cancer patients.
NICE Methods Consultation Review
Please find a link here to the BCA’s recently submitted response to the NICE Methods Consultation Review.
Answers to written questions in Holyrood
Please find links below to the recently tabled written questions by Miles Briggs MSP, the Scottish Conservative Chief Whip in Holyrood:
Meeting with Lord Mendelsohn
On Monday 30th November we were fortunate to meet with Labour peer Lord Mendelsohn to discuss the BCA’s recently published Access to Medicine report.
Within the meeting we also discussed a range of other issues facing the blood cancer community.
Answers to written questions in Cardiff Bay
Please find links below to the recently tabled written questions in Cardiff Bay by Andrew RT Davies, the Welsh Conservative Health, Social Services and Sport Spokesperson:
Official transcript from Health and Social Care Oral Questions
Please find a link here to the official transcript from Health and Social Care Oral Questions including a question from Shadow Public Health and Patient Safety Minister, Alex Norris MP on the need for covid-free wards and regular NHS staff testing for extremely vulnerable immuno-compromised cancer patients.
Answers to written questions in Stormont
Please find links below to the recently tabled questions in the Northern Ireland Executive by Pam Cameron MLA, the Deputy Chairperson of the Committee for Health:
Meeting with Alex Norris MP - Shadow Public Health and Patient Safety Minister
On Thursday 12th November, we were fortunate to meet with Shadow Public Health and Patient Safety Minister Alex Norris MP to discuss the Access to Medicine report.
Within the meeting we also raised the concerns of the blood cancer community to the latest shielding advice from the Government and discussed the ongoing NICE Methods Review
Please find here the national press release produced for the report.
LAUNCH EVENT
The report was launched at a virtual event on Monday 19th October chaired by Henry Smith MP.
Over 50 individuals from across industry, parliament, NHS England and regulatory bodies attended the launch session.
The event included a presentation on the findings from the report, a powerful patient testimony and a significant question and answer session.